First off Merry and Holy Christmas. Today’s writing is Escape from hospice house. I realize that thiis writing is a bit long but it is truly ment to impart any tidbit of info that may be or find themselves in a situation that is similar to mine. We are all connected. Tomorrow I will touch upon Stubborness and being perhaps a little too self assured. I broke a role yesterday that could have gotten me into big trouble thank God, I was fine but I scared my family and particularly my wife who does need any more stress. Fortunately the guys in my life were here to assist but thats for tomorrow. This little life event took place over a week ago know. I had been in the home hospice life for well over a week af nd I do not get out much because the stairways are my newest enemy.About 1 month ago, I saw and asked my son Dannyand asked him is their a new Star Wars movie coming Star Warscoming out? I thought that I had read or seen somewhere that there was. somewhere he said yes,I said to him okay I would like to take you my treat this timeππ π²Since my son has grown up and been working he wants to doeverything for me and pay too. Dan and I have spent so much father son time together since birth partly because economically speaking in our home my wife and I had to work opposite shifts to raise our family and supportive needs. Necessities of that day made my parenting much better than it may have been if I were at adifferent economic level.Our careers did not require much travel so we were always as a family floating in our families universe. My siblings in the family business were there living similar lives with thir children so their was continuity, structure, love support and play time for us children and adults we hahve just gotten so long well any things that were not well with our relationships as sibling my brothers etc were handled directly by my parents and my mom was no shrinking violet .AT My parents home every week end was the arrival car after car,every Sunday with13grand children emerging and running around the yard. My parents yard had a small kiddie pool, a swing set, all of the kids little bikes. Cozy couples and children’s sized picnic tables with umbrella their dog Toni and a little basket ball hoop. It was a child’s dream and ours too with my mom and dad greeting us ,kissing and the food that they always were ready to cook and serve. At one point one of my brothers brought one of those power jeeps so cute is was shiny plastic and maroon with gold accents it was my nephews Stevie’s and he attempted to drive at full throttle at any moving target lol a family snapshot of old Americana I guess. So, back on topic. As, child Dan,and our my children had a relationship just like your were too. Read psalm #139 GOD KNOWS ALL AND IT IS WRITTEN IN HIS BOOK predestined by God and I spent like many of you hours at Tee ball, baseball, soccer fields, track events ,dance revitalization my daughter’s, karate studios walking around farms with the kids to see animals etc. Dad stuff. This time and bond has been my biggest personal award of success in my WHole life personal belief. It love is supporting me now in the hour of my need.Back to my escape lol. I had not written about this right afterbecause my blog is meant to be helpful info and not to set people running out of their hospice settings ! So, I prayed and spoke to my hospice people to ask if they felt it was a good eye. They explained that the way the escape was executed for my safety that it was and I was not a prisoner. LolThis is what happened when I asked my son about the movie and ended up back in the hospital again only to be sent home to hospice my son felt bad because he felt we would not see it together since Dan and I also bonded over the movie releases including Star Wars. Truth be told years ago when it came out my son was my catalyst to go. I grew to loveStar Wars through my sons young eyes and I can picture now sitting next to his little body with his littlehair flipped up in the theatre a s he was smiling as he ate his popcorn. Dan I love Star Wars, I loved Lord of the Rings, I loved Godzilla as a kid the new ones not so much.Dan has watched them with me. I have watched with my daughters things that they love too. You have to meet your children where they are at. I certainly have tried.So, a week or so back. There was a persons at the front door. Very quiet but then I I heard the words right down here. It was a chair car with two attendants and they had a chair with straps and blanket. The chair car staff lifted me from my recliner and put me into the chair securely and off I went to my escape arranged by my Janet and the kids. I had not been to a movie in months nor had I been to a restaurant for a burger either. So, the ambulance service took me down and safely put me into my car in the driveway. I had not been in my car since April and it’s a small SUV CRV Honda and I love it’s easy for me to get in and out of Allof my family the men in my life, my son, so inlaw, my other daughters boy friends were there and we went in our caravan of cars to the IMAX complex at Jordan’s Reading Walker brook.The tickets for everyone had already been purchased so it was less waiting and the theatre had been sold out so our seats were secure. We went directly to Fudruckers for burgers.i had been there for at least 5-6 years and I enjoyed even the burger even more that I would have imagined. We next headed off to the theatre. IMAX is incredible. The movie was great too. Janet kept gently waking me up because I kept falling to sleep from my extreme exhaustion. She felt badly. After the movie ended mI was back to the wheelchair back to and on our way out of the theatre their was a group of Christmas Carolers, young, old male and female from The Mass General Hospital singing and collecting donations for Cancer research. It was so beautiful sitting there singing with them. I had not seen a Caroling group like this in years. It ma de the night even more beautiful. It was a special night and the final stop was back to our home where the house and thambulance service had just arrived back for me and they were waiting to bring me back in . I was so glad to go but as they say… There is no place like home my recliner, my new bed. My family my old puppies all exited to see us. in they were awesome.i felt alive after being out sights, sounds, smells. I also realize that if I were in a full time Hospice facility this may not have been easy to pull off because of their personal liability. I would check before any plans are made it so happens that my physical capacities are still allowing me a bit of mobility I have clear thought andthe Dr’s everyone continued to be shocked that I am functioning at such a high level giving the monster tumor in my head and now there is no treatment on top of that . The treatment plan I was last on just stopped working and options for the new tumor were zero. I do not worry, Gods got it no matter what. Since I began hospice. Hospice suggested for me/us to scrap changes that I /we were was to execute to our home here in this moment.financial andplans in this moment We have taken their recommendations to lheart and have canceled the implementationof these changes. We trust the Hospice staff, their years of experience and feel that they are here to help by Gods election in our lives in this moment. So, they can look without the emotions of a family trying to navigate through very uncharted waters for us.Its now Monday morning as I revisit this post and it was a beautiful Christmasfilled with family, well wishes coming and going,The men in my life I call the posse. Brothers, brother in laws, onephews, my children son and my son in law Chris are converged back here at the Riley homestead and they strapped me into my light weight wheelchair as they had seen the chair car do. My son even called to make sure that it was done properly because we had not booked their service early enough. My family got me to my brothers home down the street to my brother Steves house where my almost 89 years old dad and family awaited us for more snacks and delicious desserts. It again was so great! Everyone was busy so my family stepped in once again. It may good for others living this in this moment.I found this clip with my dark sense of humor.I hope you do get a laugheI and that you enjoys his! God bless you all this beautiful day. Jesus came a new once again last even today for us in our hearts and is can change our hearts, world if we turn to his loving heart and message of a humble, life of generosity to one another, service and gifts of the Most Holy Spirit that’s my hope for this ever darkening world for my Children, family and future generations that God blessed us with. We are capable of better if we try but I believe we are heading for destruction at this point by our unguided wandering and free will choices. Here is the clip I honestly hope you get a chuckle keep laughing no matter what life is short it’s often difficult but it’s beauty is undeniable its hopeful and always loving. β€οΈββοΈππ Just Me π πππv=dVuxmmhnVgE In closing I had a true CHRISTMASMiracle here yesterday When my son announced that a VI P visit who is an executive that a exective affiliated with Disney, Pixar,And Lucas Films was coming to our home for a private screening of Rogue 1 in the comfort of my own.Here is the funny clip that made me laugh. I hope it attached properly. With my wife, family and children. As, I had said earlier my trip to IMAX althoughnothing was required I had dozed off. My son fearing that their getting me out of this house had spurred him and his beautiful wife to just send off an email to that particular group and were shocked to hear back right away from R. R said it would be their pleasure and set it up R had family in the area and was flying in from California to visit family for his Christmas gathering and his family was so kind as to share his time with us. R came at 1:00 pm sharp as he discussed with My son. He came in quietly humbly embracing us and was carrying an original DVD from Lucas Films and he placed into our player. R had to put in a special code to unlock for our 1 time wiewing. There were no copies made , and his original was taken with him. I will be purchasing it once it goes to release. The movie, plot and story line was developed beautifully.to R his family and all of those who gave him the green light May God Bless You all for creating this moment in my home with my son and family. Love from the Riley family eternally.Danny and family.Amen. I would like also for everyone this beautiful Christmas Day to pray for R’s family as they make their way back to California safely. Also, R beautiful wife and he are expecting their first child in May I believe so please offer up a prayer for this as wellGod bless you all my friends. Life can be difficult but life and love always gbanish the darkness and sorrow.To my son, my 4 th daughter and my entire family you are my heart and wind under my wings foreverThrough eternity.The so, husband,and πββοΈπ²π²β€οΈβ€οΈβ€οΈβ€οΈπππ The bottom line to any shut ins that may read this and find themselves stuck in their homes… Call your local ambulance company and ask them about their chair car carry out service. There are 2 in my areas hat I am aware of. if I schedule in advance for them to come and get me from my home down to a vehicle such as my families or I need to simply get upstairs with my personal care attendant to my shower it a flat fee of $50.00
Escape from hospice house!
25 Sunday Dec 2016
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