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  • Flying High Now.
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  • Love and Prayers transcend time and space.
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Just Danny Speaks

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Just Danny Speaks

Author Archives: justdannyspeaks

The Transition from in home hospice to outpatient Hospice can be scary.

11 Wednesday Jan 2017

Posted by justdannyspeaks in Uncategorized

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Transitioning from in home to an out patient.facilitycan. It’s gets complicated because of all of the confusion given to the patients. Not because of the hospice providers but by the different homes, their rules of  fof acceptance and the threshold thresholds if it were not formy Visiting nurse and our friends from New York Deacon Paul flying in and getting the mixed up info straightened up. We prayed a lot because. Janet,Paul,and two of my children came up to tour the home here and they knew that I would happy Remeber it was discreet to be out of my hom.. So, the fact that they saw, excepted and were okay was huge to me. I and We are truly so blessed to be here.At some point, I will let every know where I am or was. If not me my my family will.I cannot tell you now because it is a very busy place up here 3 beautiful people left to go to God yesterday so my prayers are with the lost and their families. By last night 3 more families who got the called and arrived. I am told that they are younger which again is very sad. So please send prayers in a general offertory for anyone’s needs. God will give the prayers according and help everyone who needs them our prayers  and my graces are being offered up as well.

At my home in hospice we started compile info n how things would proceed and our first in home. Hospice was good for My in home care My nurses the social worker and my personal care attendant were superb.

The bottom line is the his, I had s elected one Hospice Home that I knew from visiting my friend Paul Sullivan juniors. I must say the sense of serenity love and peace was flowing their because of his families faith and fedility. You could feel it heretoo so there are other witnesses to Gods peace. Paul and Linda’s journeys eerily mirror one another. We were neighbors in our first home. In Wakefield we arrived in Aug 2003 they arrived next door a year or two later. Janet and I lost our second son Brad Michael and they lost their Stephen as well. We wee a close Paul came to see me in April of 2012 when I was diagnosed with my terminal Glio and said I cannot believe this is happening to you, he told me later that he cried all the way home and based on how I looked and his knowledge of my cancer. And his wife Linda’s work as a nurse in oncology at a Boston Paul was diagnosed about a year after with my diagnosis with pancreatic cancer which killed Janet and I and his family begin such a terrible journey themselves. Like most people who hear of a friend or family member we all get shell shocked.Paul to see. Paul was ad forever will be  a loved hero of the Somerville 🔥department Paul went to God last Dec 20th in his room in peace with his Christmas Decorations up IJanet and I was were honored to see him at  a mass they had in the chapel that we were invited too. At that mass the priest suggested that they could renew their wedding vows and they did. Now that was a big thing to do emotionally but it was incredible like they always were. He even stood up

 

As I began to say earlier . The first Hospice service was excellent in home but the information that hey could give us was very scattered due to the Hospice homes and the industry. Hospices home some have two level of care General like I am now but they have step up when my needs get even more necessary which clearly will happen. After our digging and our friends assistance we broke down the confusion and confronted the powers that be about our dismay over it. It got resolved. Our friends in New York are both as I said and have said  are involved in the medical business. Paul has over 900 ion staff in his company as Helen helped to run Bellevue hospital and I believe she is know doing the advocacy of all patients New York University  Hospital in.different hospices wanted to charge an entry fee. Which we could have done but thanks be to God Janet has wonderful insurance through work that covers my being here. The next thing we were told was that if I were to advance to the higher level that. I could be guaranteed a spot. I would have to leave and try to get back into a facility. It was ridiculous truly .

Part of the problem is that not everyone has both levels and I need them both. When the VN.A ..counselor  who interviewed me came came in for my evaluation based on my presentation mobility and how tiny my wife was and my size she said your going right now. My had already hurt her back twice in one week as I fell. My kids were running around getting me up the local police/ fire had to come doctors in fo took look and said nope you need to go now . Which I knew and she confirmed the ambulance had already been calledJanet  and my family that was there in our homage that time got us packed pronto.And, the ambulance arrved right away.

When we arrived hhere at the hospice home We were  met by the director of this house and we and asked her what happens when I get to the next level? Shie said you will get that level. And, we will never make you leave. You are ours now it’s a family it’s about you and your family. It was so beautiful. And gave us such peace.

The only little thing that upsetus here was that yesterdaythat my dad took a little fall in his houme ufortunately some of my siblings were there and unlike me my dad was able to get up on his own because of his age 88 and most 89 years young they called an ambulance to take him to be checked out to make sure nothing was broken or fractured. Thank God he checked out very well and will be back home very soon. He’s very happy about that👍😁as are we. God once again is good.This song below may seem a little melancholy but I look at them as a beautiful song and tribute to all of my friends including all of you who are praying for us. We are all connected no matter what faith. It’s Simple One God, One ❤️ Amen.

 

God Bless you all with much love ❤️ just danny

 

From a Different Perspective… #JustJanetSpeaks

11 Wednesday Jan 2017

Posted by justdannyspeaks in Uncategorized

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From a Different Perspective: #JustJanetSpeaks
Good Evening,

No, I am not starting my own “Just Janet Speaks”…Just have a couple of real-life posts that I would like to put out there for people who are in a similar situation whether it be now or in the future. 

First of all, I have to apologize because I wasn’t born with the gift of writing as my husband was so I’ll do the best I can. I’m writing for the same reason that Dan is documenting his hospice home experience…Just hoping to help people if and when it comes time that they have a loved one who becomes gravely ill.

I just thought I would talk about what a wife/caretaker goes through mentally and how I’ve made it this far by the grace of God and plan to stay strong even after Dan’s passing. This is probably easier said than done. It’s hard to imagine what my life will be like after he passes. I honestly can’t see past it at this time in my life but, unfortunately, I will know soon enough. I do know that he will always be with myself and my children to watch over us. He will always be in my heart. That’s what I truly believe.

Luckily, I have my faith which I tend to lean on during a time like this. Or let’s just say, I should be leaning on but, at times it’s really difficult and if you’ve heard me when I’m at my lowest low (which unfortunately a few close friends have heard), you would think I had no faith at all. When that happens, I have to stop and put things back into perspective. I have to admit that I am only human and I have questioned God many times during this ordeal. It doesn’t mean I’ve lost my faith or that I no longer believe in God. It just means that I’m human and as a human, we are all selfish when it comes to losing a loved one especially one who you feel is too young and too good of a person to leave this earth but, it is not for us to decide. Unfortunately, we have no control. Even all the money in the world can not heal such an illness. Look at Ted Kennedy who also had the same brain cancer that Dan has (Glioblastoma Multiforme Grade 4) who unfortunately couldn’t save himself even with all of his money. It’s a horrific disease that keeps on attacking and always comes back with a vengeance. 

I still find it hard to believe that it has come to this point. The time where there is no more treatment and nothing else that the doctors can do for him. I can’t say enough about the wonderful care that Dan received and the impeccable bedside manner that his doctor and nurses have over at Dana Farber and Brigham and Women’s. Just thought I would throw that in. 🙂 I’ve said to many close friends/family that it seems so surreal. This place looks like a fancy hotel…only without a pool….Sometimes I let my mind wonder and it could almost seems like we are just hanging out on vacation. It’s sunny and bright here with skylights and doesn’t have that hospital smell at all nor do you feel like there are germs everywhere and feel like you need to keep washing your hands. Luckily Dan is not in pain which I am grateful for. We have seen many suffer in the end with so much discomfort.

I’ve definitely been through all of the feelings that one has who is about to lose their soulmate. We have known each other 35 years and have been married for 30 of those years. 

I remember being so angry that Dan had this incurable illness. I felt that it was not fair and I was very angry with God and angry at the fact that we’ve already lost a son at two weeks old due to a rare heart defect. I was angry and felt like I’ve already paid my dues and why should I have to lose my husband now too. But, I’ve come to realize that everything seems to happen for a reason-we don’t always know that reason and sometimes we will never know..maybe that’s why we have a son in heaven?…just so that he is there to greet Dan, his father. If you read psalm 139 which Dan loves and quotes all the time, it basically says that God knows all before it actually happens in your life. In other words, God has a plan and he knows all.

As faithful as I am, I have had moments that I am not so proud of where I haven’t been so strong. I have to admit if I’m going to cry, it’s usually by myself for the most part at nighttime when I’m alone. Best time to cry right?! When no one is around right?!…So I thought!!!…until some random pizza guy rings your bell at 12:30 in the morning and scares you so bad that the tears turn to fear-true story! Who on earth delivers that late in Wakefield?! Apparently they do because he was holding a pizza but, had the wrong address. Normally, I try not to cry in front of the kids but, that doesn’t always work out too well either-sometimes it’s just hard to hold back. I’ve cried only to close friends who apparently I felt comfortable enough with to let out my true feelings, but, I know that it can be overwhelming for some people. I don’t want any of my friends to feel as though they need to be my therapist after Dan passes. I will seek professional help before that happens and take it one day at a time. I don’t want my time with my friends to be spent with them consoling me.

If Dan has taught me anything, it’s to be faithful and strong and to deal with whatever comes your way.

My advice to everyone is to live each day to the fullest and enjoy life because you never know what tomorrow will bring. Never take life for granted because life is too short. Always be the best person you can be and be kind and caring toward everyone. I wish you all the very best and hope that you never have to go through this. 

Stay Strong-God Bless!

Love,

Janet

Great nightlast night praise God.

10 Tuesday Jan 2017

Posted by justdannyspeaks in Uncategorized

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http://www.usccb.org/bible/psalms/139Smooth sailing last night and today. Thankyou for all of the kind messages and prayers and to all of the staffe from personal care attendants nurses and the building cleaning staff you are just a God send . I haveadjusted my diet to avoid as much dairy that is my meals etc to prevent another situation.his song came on last night as Janet as Janet and I were laying  in my my hospital bed just talking andjust were laying in bed. TO day is one full week here already. . Yes today is one full week since I leftome has been some of the most beautiful moment that we as a family have ever shared so again we need to savor every moment they are a gift too look up and saykyou to God for.It’s a beautifusunny day. So, get up and kick it.God Bless you all. Love justdanny and family. I

 

 

http://www.usccb.org/bible/psalms/139Smooth sailing last night and today Thankyou for all of the kind messages and prayers and to all of the staffe from personal care attendants nurses and the building cleaning staff you are just a God send . I haveadjusted my diet to avoid as much dairy that is my meals etc to prevent another situation.his song came on last night as Janet as Janet and I were w layeing in my my bed just talking andjust were laying in bed. TO day is one full week here already. . Yes today is one full week since I leftome has been some of the most beautiful moment that we as a family have ever shared so again we need to savor every moment they are a gift too look up and saykyou to God for. It, its a a beautify sunny day. So, get up and kick it.God Bless you all. Love justdanny and .:family. Thankyou all for your messages, including on my blog etc. it means so much that I am actually giving something back while Gods got me here in peace and prayer. This is the song that Janet and I heard last night that we love and not heard in a while.

 

 

Gods got this thing called life whether we are with him or here waiting. Just believe.❤️️👍😁

 

 

//www.usccb.org/bible/psalms/

My unique and probably once in life a lifetime experience during this Holy Advent Season. 

10 Tuesday Jan 2017

Posted by justdannyspeaks in Uncategorized

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My Advent journey very different than any that I have ever experienced. It was so a contrast from my everday experience with terminal cancer. I will say this Christmas started earlier than ever there was so much doubt that I may not make it. And, honestly who really knows when as my friend calls the bell tolls for thee. My hospice experience has definitely proved to be better than I could have ever had planned for . For my My Advent experience .My family loves it too. Like I have said. Before no one wants to be end of life Za Hospice Home but,thankGod!  they exist because, as of last Saturday I was not safe at home. Now, The Advent Season  started early.in our home  In October in terms of Christmas Music anyway. I found one day that I heart radio had a free App for the Radio and it showed Christmas radio 365. I had it on until the first of the year January of 201 My Janet and I have always loved the Christmas and Advent Seasons we love the lights traditions of faith, family,friends and festivities the children’s pageants, concerts and excitement for the whole experience. It’s  Christmas lights. and the true meaning we have never been big commercial shoppers what else do you need ? Your living a good life, your kids are well taken care. We did. It travel very much so the week that Janet and I took off from Christmas and New Years were spent hosting family and friends to dinners and spending time with them. We really enjoyed this time . This year was very different I went off to Brghams and Women’s end of Nov ember for my latest huge tumor that is not treatable and when I was returned to my home in Dec the ambulance driver said oh, your home looks so pretty the lights are beautiful. I could not see it because I was looking down the hill. When they pulled into my driveway and they got me out of ambulance I was so happy that the family home was d corated .Our home has always been lit since our earliest days in our Belmont aparptment.
Our children and their special people in our lives they are ours and we are theirs got everything out and up and added a really nice new item to our front lawn display that sent a really neat night pattern of green and red little floating lights that danced around and left a pattern on the house it was so nice. The little lights would come through the sheers in my living room and Janet and I I/ would lay in my hospital bed at home and watched the little colored lights as they float around it was really relaxing. The children even decorated the mantle in the family room and an old decorative ficus tree it looks brand new. As, I began to weaken my brother stayed on the couch in the living room and said that it was cool how the the light and shapes were them they were low voltage so they were

I will be posting pictures soon to show whatThe inside of Hospice is like. It’s not scary. At hope Christmas/ this Advent
Being considered . Gods got this thing called life whether we are here or he calls us and Miracles happen. I do believe!

 

Bumpy night last night

09 Monday Jan 2017

Posted by justdannyspeaks in Uncategorized

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I

Good Afternoon everyone.Sitting here on a beautiful sunny day looking at the pretty view from my sunny. Room. I look onto the remnants of the snow that fell the other day and at the woods. It is very very peaceful as always.

 

I have always said that I would be honest in everything that I write about my journey because of  wanting to help another who may or may not encounter something similar. My energy level continues to be. Weak and last night,early evening I woke up after a nap and felt that I needed to use the restroom. I do not get out of my bed at all even with family because the Hospice Home is about my safety and preventing further injuries .I am a liabity .hey are awesome and so loving. When I ring they run because they know that I I know I never call unless I need something or often will not ask anybody for anything  feel like I am bothering some one and I have felt that .i am not the only person here who has needs and mine are far less serious than theirs at the moment as far as I am concerned. The last almost 5 years I have been saying…I am sorryto Everyone for everything and no matter who it is in my life they have always the said thesame thing to me stop.itand t, if it was us you would help us the same way. You have always dreamed me everything for everybody. So ,it is in my own mind know a definitely a pride issue. feeling responsible for the illness that came upon me that changed our whole families livesincluding my moms who was at the time fighting her own battle with lung cancer during ng that time I got there to be with my beautiful mom with my family driving me. When  it was hard to get there. I spoke to her at least twice a day and she loved the blog too. When we as a family we’re together. My parents  and siblings who ever were there in my parents dining room would pray together and in the end of prayer we did our Prayers to the St. Rachael the patron Saint of Healings and we used the blessed oil from My home parishes healing ministry. St

 Joseph’s in Wakefield AMA. Ty

Like a say, I being the dad that  the dad. I am suppose to take care of my family .there is no known cause of Glio and it is on the rise unfortunately really getting common. I do believe that a cure will come  for all cancer someday. Not for me but hopefully for you family and your loved ones. Everything is inspired by God through his Divine Spirit to us Medicines, machines 

So, everytime my aides or nurses are here they tell me the same thing. do not say sorryWe chose this job and I know God has them  in their ministries that they agreed to. I / we truly love ❤️ them and always say God Bless you.  Last night I had 2-3 accidents not their fault which required one of the aides o be here after her shift washing my laundry for the second tand third cleaning my bedding, the bath etc.Maria had me fully cleaned up for the second and said please stop saying sorry. said your sadtonight which s I said I am just so ashamed. Guys do not do not this. I need to say this I was not raised in a home where women were second class citizens. Or were second best. My momand dad worked together in unison to get their family to where they envisioned us to be. My mom worked a very successful career in her time-and frankly was a ,beautiful kind doer she smart She said Danny you have brain cancer and have no control. She said you are Miracle, to which I said we are Miracles just by our births. I said you are all miracles here to your patients too And they truly are.She said You are helping so many people there and have no idea how many are being effected by your blog and by your loving spirit are beno idea. The ..” bYou have no idea. She said everyone can feel the love from you and your family flowing through the hallways it is so rare to see theis here we never see this

She  said to me that she makes prayer worry boxes and she was making one for me . The next time she comes she said we are going to use small slicky notes for whatever is on our minds and just give it to Godthrough the slot  and leave it with God . She said once it goes into that is my Hospice experience and the love and support is unbelievable. I hope that I am not offending anyone by my candidness. Janet crawled into my bed and hugged me and I put my bed behind me to hug and talk and I put my pandora on and set it to my Christian music selection. and it was amazing all of the different songs that came up. This is one of the first songs by Natalie Grant.

God is with us always and I needed to say this because last night I was not feeling so bulletproof. God restored me by his the gift 🎁 of music while I slept with it gently and softly playing all  nightOn a really cute note every night. The kids always kiss and hug us repeatedly and say your the cutest dad and the best dad in the world.. I responded last night to them no I am not my dad/ papa is and I meant it. He is what I want to be when I grow up.and, I do mean that sincerely. I have never met another like him. I know I get my faith and my fight to go on from he and my mom so I am truly blessed by the foundation that Faith and my foundation of strength that came from so much living so many people we all are connected and we all know each other by God’s election if you readA.

Psalm #139 you will. The very bottom of the psalm speaks of anger that God should kill all wicked. Knowing God the way that I feel that

I doGod is love. It’s when we arrive at his judgement seat that each of us will be judged by his message. Also, my further though is that God just struck them by my faith they would be denied their free will choice to reconcile themselves to their wrongs and their God. Those are my thoughts anyway. I think that the bottom of #139 were the personal thoughts of the prophet who loves God so much that he is personsonally invested in the message and does not understand someone not feeling the sameway. I just do not like the verbage. It’s not the word of God to me.everyone is free to use their own faith to see what works for them. In my feelings once again, there is one God and many valid faiths. No matter which it is . 🙏

 

in afinal note the stuff that happened last night is suspected to be My now beingnLactose intolerant. Ii have not ever been but in life things change.,they make homemade incredible milshakes here. My desire yesterday for a nice fresh Strawberry 🍓 shake uncovered something new.So, in the future I will watch any dairy that I take in. The shake was unbelievable but new again.

AA

 

God Bless you all always love just Danny and familyEnjoy this beautiful Day look up and say Thankyou. Amen

 

Advent a once in a life time experience..

08 Sunday Jan 2017

Posted by justdannyspeaks in Uncategorized

≈ 4 Comments

Good afternoon everyone it’s been a little delay in getting this post done. My energy continues very low, I sleep a lot but thank fully feel great my family is constantly here cith me here so tha is is so beautiful. I tell them please don’t feel that they don’t need to come back and forth constantly with work and other responsibilies I don’t want them racing and not living their own lives. Plus, I worried yesterday about the ice etc and they all insisted on coming uanyway. today they are all driving through the snow which I do not like # dad and moms worry. But, ultimately they are adults and We  raised them to be positive and to live in faith so again it’s their choice. Amen.
Janet has not left my si. Being in Hosppice out side of my home full time is the best decision that I have made. For sure not being redundant but any one who may be. Wondering. I will be posting pictures on this post of my experience here. That will show that My experienc w

Lent this year with the terminal brain cancer and the beauty of th Advent
lights and the Christmas 🎄The the Advent Season Early. This year began very early with music anyway. I found out in Oct the Octbrr quite by accident about a free App known as I heart ❤️ radio and it covers basically anything you would want to listen to I saw. a station that saidChristms o c
Clicked it and really began to enjoy it as did my familyit brought a littlejoy back into our lives. Like I say illness does not effectjust the sick but the whole family every generation. regardless of what. Love ❤️ is love and we all bleed for oneanother when we are in a tough patch whatever it may be.Everyone in this life has something going on in their lives it is the human condition.
O
Ourfriend Jean Marie who I wrote about earlier on a blog post sold their home in NorthAndoverto go off and to and puRchase their retirement home in N.H She then was moved by her job abroad so off she offered Janet her Christmas tree ours had lost it lights and our our original tree 🌲that was in our first home was about 7.5 ” tall and our new home has 10′ ceings in the living room so it definitely looked like a Charlie Brown 🌲We had purchased a new tree back 3-4 years ago it was the right height but it just did not fit the space. When we got home 🏡 from the hospital in Dec from my last tumor which is currently in my head that has no treatment available.Janet has been with me non stop.At home when I began my Hospice journey she was afraid to leave me I am a big guy she is tiny and once the falls began and my first seizure. I again said I need to go now. I was right as was the hospice professionals. Janet is here with me every moment not be cause she is afraid of me getting hurt she just wants ever second to because She is afraid it’s because she is very very loving person and wife who is just here and spending every precious moment plus while the family has got the center here getting supported by the center” with my children, family and many of our closest of friends who have been so wonderful to us over the last many years. We could not be in a better place honestly. I am a very blessed man. I have no feared pain what so ever. And have love abounding.Janet was squuzing into my hospital bed at home just to hug and talk to me. Now, she is here doing then same thing at night here. S o, it’s good to have this time together as I have said before and totally believe it’s easier for the person to go to God than the families that are left to grieve. I honestly do not think I am going anywhere too quickly. Again, I believe Gods got continued work for me to do. But who knows. Everyday people are losing their loved ones here and a new person gets that call that they have an ambulance on the way.
When I arrived home from the hospital on The ambulance company said your home looks so pretty the lights are beautiful. I could not see them I was looking downhill after the ambulance backed into my driveway I saw what a amazing job my kids did in I was so happy to see them and their significant others and that my kids and their awesome significant others. took out all of our old decoratiions and some probably 25 to 30 years old and threw out a lot of themWhat was really cool is that they found our original star that we had not had up for years because the top branch of support either was too weak so it was crooked or .But, the tree that Jean Mariegave to us held the star perfectly and the tree 🌲 was so beautiful and perfect  actually🎄👍❤️️. It, made Janet so pleased which is really what it is all about to me if my family is happy Everyone of them from my dad , my siblings, Janet and I then am in a good place
Whatever was gone they threw out
We are all so thankful for your love ❤️ and prayers. They went out and purchased one of those new projector lights that projects small laser like orbs around in the air that float around that also make little patterns on the 🏡 It They decorated the family room and even decorated our old ficus tree 🌲 that was in our family room it looks so nice My kids after I left for The gang put everything back into storage for us too. I am going home for a dinner with my family too. My kids need it and it will great for us as a family. So, I will set it up here with their social worker here who is here and will my outing for my get together arrange together home 🏡The chair company will be lined up to be at my home and they can safely get me up and in. It will be my children and their significant others if they are available and my siblings, my dad.Wehave nvited one of our couple friends too who are coming in from New York who have scheduled a trip to visit us on ce again. So, We are getting excited for this like I always say I am making yet another fun goal to reach. I am certain I/ we reach it too.

Finally, As proof that Hospice is not scary.

Myself and my beautiful Janet with one of our fur babies Jerry. He was visiting us pups are welcome as long as you supply the paperwork from your vet showing that all shots are updated.

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This is of my son and I taking a walk around the beautiful property. They have a koi pond and meditation .

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The picture below of my youngest daughteRachael  and her awesome boyfriend Austin is considered our son. He is incollege in Boston. Rachael met Austin met years ago at St.Basils in Methuen Ma. Awstn is from N.H. And he and his family have stood with us every inch of the way. Again, we are so blessed.

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This is the blog card that my son made for me… please share the blog if you think it will help other people.

 

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Here’s the song for today. God Bless you all, thanks for your prayers!

The move…Live from my home away from home.

04 Wednesday Jan 2017

Posted by justdannyspeaks in Uncategorized

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Good Morning-all, just Danny Live here from my new temporary home A Hospice Home North ofof my family home It is a beautiful Sunny day. I feel great Praise God!

We found out yesterday about my scceptance to this particular Cener and we had less than 45 minutes to get packed and get out. The ambulance that e Center uses had already been sent out for me by the HospiceCenter. JanetI had nd some of our children there and two of my siblings were there. So, they all jumped up and got I of m
of family that were was a my 🏡 Got us ready. The ambulance came and arrived human and off we went. My children said that after Janet and I left the pups tails all drooped and they wandered off how cute are they ? Like, I told my kids I will be back at least for a family dinner or something. I said I can get a lift home ambulance service that carry in can bring me in safelythe cay in service up to be there once again. Plus, only Godknow if and when. So, I will just forge forward and make the memories take place with Gods blessing.
Wait untilI get home 🏡 again!
I will be blogging next on my unique Advent journey.

My new Hospice room is only two in this complex to have a skylight. I have written about the love ❤️ of skylights between the sound of the rain ☔️ on them and then. On a clear night the stars. The rain last night was healing to me and I woke up to a morning 🌅. I never asked for it nor do I expect one. But, As I say God always gives us better than we expecct or deserve. This place is beautiful serene and that’s the way thatit to be. Their are awhole lot of people here with grieving families here and for that reason
They askedallnresidents including us to keep it primarily tomfamily here. Especially,here at night which I truly understand. A lot of my friendsbnhererebThey are nowvfollowing my blog now and have been moved by it.sSo, I think they may be concerned about a crowd louder that what they can handlehere.I will be writing soon about the ins and outs for anyone who is or may bebin transition to an outside facility we have learned a lot about ththisci his process that will definitely benefit you all.
The
This is how I feel this morning. Gods got this! It’s going to be 50degresses and I have family and patio so I am going out tart ISO fresh air and a little natural vitamin D 👍👍👍❤️❤️❤️

https://www.youtube.com/watch?v=FscIgtDJFXg.This next song is my personal anthem since my diagnosis in 2012. I believe that My attitude of gratitude and my desire to fight for life is a gift that I needed needed to fight on so here is that Here is the song I love this artist his style and music

Just call my name/ I will be there

04 Wednesday Jan 2017

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The lovely hospice nurse was here yesterday as was my Personal Care attendant and I was talking to them. They all follow the blog at this point which is beautiful because they know I am sharing my truth in a situation that can help others. We talked as a family the ones that were here about something that awhole lot people who are ill or feel lGuilt like we are upsetting and ruin lives by our illnesses. Like we are This is one thing again that Hospice said because of their serviceIt has been a constant thing for me over the last over I say I am sorry constantly. I feel as if I could have controlled the cancer or prevented it in some way which is totally irrational but very common in a case like any cancer patient. I also said I feel guilt over the people out there that don’t have all the support that I have had always. I was at least visiting people when I was driving bribpnging flowers, candy, a smile a kind word and the Holy Eucharist if they wanted to receiveit. I just worry about the people who have not. The Staff from Hospice said Dan if they come through Hospice at some point we will be there. They said Dan you have no idea how many people you are helping through your blog . Those words were healing to me for sure. I am trying to meet God through myPrsyer, meditating on his word and waiting upon his inspiration and direction on what was next this writing is directly based on my conversations that my sweet Hospice nurse St. Mary as I call her spoke of. 👍👍😂❤️️Happy, healthy and a prosperous New Year for you and yours. Iour prayers. Love, justdanny and family. Amen.Everyone.

https://www.youtube.com/watch?v=nRo6cKkujmcj

Go live your day with joy and zest. Count your blessings Andes always look with a thankful to your Heavenly Father 👍❤️️😁Amen.

This has been my own personal anthem since getting cancer 4.6 years ago I love it, I loveMichal Bouble and this song represent my tenacity.tat God gave me through my faith. With love just Danny and family thank you for your continued prayers also. Ours are coming your way of.

Thankyou Nancy, God Bless You also. It was nice to meet you as well.danny

03 Tuesday Jan 2017

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Life just turned on a dime once again. Happy New Year. 2017 is here.

01 Sunday Jan 2017

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First off, It’s official. 2017 has arrived so once again Happy New-years Day and it is a beautiful one to boot.

I have described my situation with Glioblastoma as feeling like a man running with a speeding bullet right behind my head trying to get me. I have been blessed with the gift of peace and not fear since my original diagnosed. After my 3rd Glio tumors arrival and the nature of it people have been more nervous with no treatment. I always remind people that I was blessed to have had over 4 years free from the cancer, which is not the norm for a Glio. I come from a place where it’s always about attitude and gratitude. Attitude. Always remembering that. All good is from God. So, I always give him my thanks and, all glory goes back to him. You 😊 at Glory always.

Well, yesterday on New Year’s Eve Day the bullet hit my head I guess you could call it. I seem to have had a small seizure for the first time. And it caused such upset here. I felt so bad. I have had my first small cold with a dry cough that has kept me from sleeping well or almost 1 week. I think that the cold plus the tumor in my head helped to wipe me my toral physique resulted in my inability to really move my left side and it became an issue real fast. I had my wife, my son ,the men in my amazing kids lives who I love they are ours. And, I we feel we are theirs, Eternally. I had decided that I wanted out patient hospice if and when the time came. We set guidelines on. My wife is just over 100 pounds. She is tiny and I am a pretty big guy, I had her and the men trying to move and place me on the bed so that I would be safe. We had decided with Hospice that for us my inability to go to the first floor bath here would be a transitional pointed begin to get a hospice bed in a facility lined up.

Hospice suggested not to do the lift because they felt that my condition even though they were amazed at my additude and the way that things could change on a dime, based on my tumor and their past history in the industry. Well, yesterday the dime changed. Their fear was that putting the chair lift in that it would not be usable should My walkability change. I would not be able to get to it safely. Well, yesterday became a fact too and I thank God that we listened to them and took their advice. They are amazing at what they do for

So today, Janet is busy touching bases with who’s available during the long weekend. I have had one place in mind but, I need to be accepted by they were correct yesterday. In their advice and my home is now not Danny doable. My wife and children are not my Hospice workers and very shortly I will be where God wants me and they too will have their needs met while I am taken care of too. The sadness in their eyes yesterday spoke volumes to me. I called my sister and 2 of my brothers thus far. My brother went to see my dad and speak to him personally. He is my primary concern in this moment. It’s a horrific situation for any parent to lose a son or their child. So, I really feel terrible for him. He grieved terribly over the loss of our son Brad Michael to this day. He is an amazing man of such strength and compassion . The man that I always wanted to become. I am still a work in progress. For what it’s worth, my children all say dad, you are the best Father ever and thank you for everything that you and mom have done for us, particularly their faith which means the world to us. I told the children once again that love never dies, I will always watch over them and I will. I believe that God has a plan. I/we believe also that miracles happen and that God does not expect us to do Miracles. He expects us to believe that he will. I have confidence that Gods got me Here when he calls me. I sit with peace, family, and not one worry. The following song came to me last night as I said my prayers. We all have terrible situations in our lives. This song is from Whitney Houston. It is the last song that I am aware of. If you listen to the words they are incredibly touching. Its I look to you. She had been through so much in her life with actual drugs and alcohol which, damaged her voice and she was working to regain her ability to sing.

This song resonated with me and this is what I have been doing. It’s all that I have left to do that is to reach up to God. He will meet me/ our family in the window that we are currently in. On a very happy development while writing my brother, brother in law and my dad arrived, so I am thrilled to be here.

Enjoy this song, Whitney Houston, I look to you.
Look up to God he is waiting to connect with you. I think that she sounded and looked great too. God Bless her may she Rest In Peace.

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