This weeki went well. Physical Therapy and my Avastin infusion yesterday at Dana Farber.When I say I have not had a lot of adversityin my life including my brain cancer saga, i sincerely mean those words. I have such support in my journey my wife, children, my parents, my sister, my 3 brothers and a countless number of friends ans many people who i had not met until 5 years ago. Ifound myself as I became more in need of assistance dig deeper and reach out to others who may not have all of the support that I have had. Love really does fix everything. My faith, my family and my friends have given me my joy and from that joy i have elected to let the love flow out to others.
If, I can please ask for prayers tonight for Sue who had surgery today and for my friend from Dana Farber Leslie and her husband as they negoitte their journey with brain cancer.
last but not least my friend Tony A who has pancreatic cancerand Ashwin who is struggling with pain and illness. We pray to the Lord for healing upon them and for all of our personal needs.Amen.
People have showered love upon my entire family. I thank God for each and every one of these angels and all of their prayers of support. Amen.
This closes out my second week of treatment for my Glio Blastoma diagnosis. Today was my first infusion of Avistan too. I had no negative side effects and continue to feel well . Praise God. I am being hunted by a horrible enemy to man namely cancer. My first diagnosis just over 4 years ago Jesus revealed himself so beautifully to me that I have been in a state of being so peaceful and not living in the fear of the cancer. God is in this journey defending us. With the second diagnosis and brain surgery I experienced the revelation of cancer with a different view . First I was angry because of everything’s hat I and my family have been through. Every single day has had its challenges and any improved mobility that I got back was based on Gods goodness and cease I made difficult second to second choices to focus on pushing to push through a situation to get to my desired goal. Each day needs to be a better version of the last day It can be a small step forward of a big one it makes no difference really. It is about being present in the moment with a small word of encouragement or a smile across the room to a person who is lost in their day dealing with health issue or their own problems. Lord know we all have them. . The smallest things in life are always the most important. It’s about seeing people who feel invisible, lonely, helpless or hopeless. We are all loved by God the same. We just need to remember to share that love.
So after, I got ready this morning for the doctor andto begin my new treatmentplan today this song came to me. I just googled the song with lyrics. This is how I feeling this moment. I Amin round two now struggling on a personal level and this time unlike my first journey my mom was here praying with me and supporting me.i really miss her. Know in my heart that she is by my side but truly miss the tone of her voice and holding hands as we prayed.
Ihave taken Jesus by the hand and he has walked into round two with me. He will help me to be victorious over this terrible disease.
I know now only one thing. Whether I survive long term this battle only God knows. I know that Jesus already won that war when he rose from the dead. Their is no eternal death so. I fear not death. Plus Jesus will never leave us. He is our Victory.
God Bless You All. You are in my prayers as well. 👍😀✝❌⭕️
So, what ever is going on in your life find the ray of Hope in your day and share that joy with others. Live like no one else today and you will live like few do when you leave this Earth. God Bless you 👍😀✝
Hello all this is my first post after being released from Brigham and Woman’s on Sunday from Brainsurgeryon Friday morning to remove a reoccurrence of brain cancer that had been found that I had a new tumor the size of an orange. My wife being very intuitive and connected to me saw something not quite correct in the way I was going about my daily affairs. She stayed on point and got me to the doctors expecting the best but fearing the dreaded words it’s back. Glio Blastoma is a vicious non curable cancer that is all about one thing killing the brain. It takes just one lone cell weeks to multiply into a killing army. I had the head neuro surgeon Dr.l Chiocca. said that in 300ocases he had not seen a case like mine.The night before my surgery Thursday evening one of my closest and best friends who is the healthcare business flew in with his wife and the they prayed with us and he helped to prep me for surgery shower shave etc. a humble man a Roman Cathoilc deacon and a COO of a huge nonprofit with global reach. So, as I say God has us andwe can do anything if we will say yesto his call to service. Paul was Jesus to me serving my needs as Jesus humbled himself on Holy Thursday night by washing his Apostles feet. we are called to serv Being in the hospital on May 1st I kept saying it’s the month of Mary I felt her presence with me as I lay in bed asking for her intercession for my needs from her son Jesus Christ. What son does not listen to his moms beconing ?
So,
My Blessed Mother is my prayer partner along with the Holy Spirit from God they make my life and soul joyful through the tough moments in my day and this life nothing is too great that God cannot handle. So it was not this time Glio vrs Danny this time around my faith allowed me to accept God into my battle and he drew his strength and laid the blessings upon my wife and myself, my superb Dr’s and hospital my friends and family and I walked from the hospital once again to start my new day with visiting nurses. Pt aides etc.
So glad to be alive. But do not fear tomorrow either.
keep the faith no matter what you are going through God and his legion of angels is never far from us he just requires us to believe that he will do what we cannot.
Great days. Coming out of the Lenten Season and the beauty that is brought to us is something i am honesty understanding. I am living Gods promise despite the daily difficulties. This week I have a full schedule for me. Nursing home visits, and I am meeting a friend at Alocal rehab this Wednesday. I also have the Livestrong program on two days and my weigh in on Friday. I have been on the IP diet plan for 5 weeks and I have lost 15 plus pounds and many inches.
My primary concern now that my weight journey is underway is my block in my brain that causes me to fear falling in open spaces or in a crowd. I caused this injury during an angry outburst while walking the track so I prayed on what to do and God showed me the way I am seeing a sports therapist who deals with athletes who have fear for whatever reason. I believe that this person is in my life by Gods direction and I believe that I will be soon walking anywhere and everywhere to build my muscles, my lungs capacity and my heart muscle.plus walking allows me to relieve stress to enjoy nature and to think and listen to God. Works for me😀👍
Looking forward to that day that I can sit with this person and start this journey. All journeys that we undertake will take us to the next better version of ourselves. It is exciting really . I have faith and believe the key to my destiny after cancer is still yet to be revealed. Amen.
please pray this evening for all of our sick friends.
Jenn. C. Glio
Bryan W. Glio
Teddy A. Glio
Anthony J. Pancreatic cancer
Elizabeth ovarian cancer.
We pray to the Lord.
lets pray for one another, our needs and concerns. Let us pray to the Lord.
Today I am saying Thankyou to my life long friend. This friend knew me before I knew him. He along with my mom and dad helped me to grow,to understand his ways and to be safe during my early years. He certainly has never left my side even though at times I certainly wandered from his. My friend was at the Alter of the church as my bride Janet and I were wed nearly 30 years ago. But heck why wouldn’t he be , after all he put us together while we were working at the grocery store in our early college years. He knew what we needed before we did.
My friend helped to give me courage as a young married husband to step out of the boat of life onto the water and begin a family business with my brothers knowing by faith that somehow our friend was there in that moment helping us to make things happen.Our friend wants our success. It’s then that we can help others.
Because of our friend life his creation came forward as my wife Janet and I welcomed our first child Dan Jr. Into the world.
Our Dear friend was with us as we lost our second son at two weeks old Brad Michael was born with heart disease. As our beautiful baby Brad Michael was laid to rest, We as a family stood there stunned and broken. By his grave on a beautiful April day we watched the undertaker carry his small casket to our family grave. In our broken condition the things that we clung to was our little boy Danny jr. Who was around 2 AND we felt Our families and friends arms firmly around us . His passing as the years have taught us was not not in vein nor was his passing our families life long tradgedy You see Brads case opened up all kinds of studies whereas his case was rare at that time. Brad was born with single right ventricle and pulmonary stenosis. His Doctors and Children’s were so wonderful kind and compassionate. Brads passing also blessed other families and children whereas we donated his organs for other people in need.
God did not make our Brad I’ll. That is due to the inprefection of this world and life we are not in the garden of Eden. That’s why Jesus came to give us hope.
Brad was a special gift that altered our reality of this world and its connection to the next Heavely life. He saved our family. ❌⭕️
Brad changed the depth of our entire families faith. His presence is felt daily in our lives and we love him and he loves us. Love is eternal because it is from God.
We were blessed to welcome 3 more children/ daughters to our family and God was with us in the delivery room and heard the words congratulations you have a beautiful and health beautiful girl too. 🙂
My friend was with me as the doctors told me that I was terminally ill and my friend told me I had cancer, cancer was not from him and I do not own this cancer. My friend set a peace upon my heart and in my soul that has never left me.
Our friend was with my family as my mom prepared to leave this earthy existence. My mom was talking to Jesus and was talking to his mother Mary OUR Blessed mother very shortly before her departure and my mom was calm as she took our friend, Jesus hand and went to meet her family and friends who awaited her.My mom is remembered daily , hourly, in the moment and in the second because she is surrounding us with love. Amen.
My friend is with me now in this moment guiding my writing and filling this page with his beauty.
Our friend is the best friend that you will have or need. This week in my church is a reminder of what our friend Jesus has done for us it is Palm Sunday, the Passion of our Lord and Savior this day. This week reminds of that our friend Jesus fulfilled his Earthly life as the only Divine human to ever be born and his destiny if he accepted this cup was to die for mankind/ our sins. He took that cup and that is why we live with the hope that this is in fact act 1 for us as humans.
I have come to appreciate in the last 5 years that when you have a personal challenge there is nothing more important that reaching out and advocating for what We perceive that We need. It was not the normal action that I would take in the past I never pushed or asked Anything of anyone. I was self sufficient . When I hit a wall I just excepted what I was told and what the outcome might be . Since Cancer and hearing the terminal word I just kinda changed my modes operundum I began to try and make things happened and my success that I have achieved has then been shared personally by me with many others in various ways. In life it is not about us only. My feeling is that Gods got me here in this moment to help others to show others what he can do. And I give God all of the glory for my being here in this moment. And, I am very thankful.
If Jesus was all about himself then he would not have taken our sins upon himself nor would he have allowed himself to be tortured and murdered for our benefit.
This song holds a great deal of significance to me. Listen to the words. Look what our Savior has done for us. He is loving and generous indeed.
With the onset of my Cancer which began 4 years ago on 3-31-2012. I began to realize that if I was to fight this terminal cancer that I needed to push myself so that the establishment whether It be the doctors,hospitals , physical therapist insurance company right down to home care that was in my home and in my life that there is but one Author of life and who created all. That is God. No one knows anything personally except that our God/ higher power if you wish is the only one who can give you how much time you have to live. He decides. I then had to decide. to open myself up and speak the hope and victory that God had placed in my heart. I then needed to summons the courage and let my voice be heard. Well, because of prayer Gods courage filled me and I was able to speak the words of my heart, my desires and what God had told me in my Spirit. My journey is not merely about me and neither is yours. We are singular yet connected. Quite beautiful really. There is not contest to be won. Just our personal bests will do and that makes for a life well lived. I believe that God expects us to live joyfully towards that end.
I told the Doctors ” God told me that I have cancer, cancer is not from him and I do not own this cancer “. God gave me the courage to speak those words. God also gave me an unshakable peace that resides within my being to this moment.
My belief is through the Holy Spirit we are given a robust strength,of positive and warm heavenly support that can permeate our disease and return order to our bodies , minds and Spirits to a healthy state.
My journey has taken the medical world and made them say, why? How is he florishng so well and healing slowly too? I told them all once again, God.
We are being healed by God’s machines, God’s medicines, And the healing hands of the doctors which are extension of the healing hands of Christ Jesus.
I have pushed the establishment by my self Advocacy which has helped other Cancer patients I am sure. I say this not because I am great but because God calls us to live in his hope and to believe that he will do what we cannot. I want others to believe too. Love your neighbor as yourself.
There is joy in every storm. And the rain helps to grow the garden of our lives.
I have won some of my self advocasy attempts easily and won others after waiting months and enduring lots of personal tests. One of these wins was in the restoration of my drivers license. Upon my diagnosis of non surgical Glio Bastoma Multiform grade 4 brain cancer I was required to turn in my license. I was no longer considered to be safe behind the wheel. I had no problem with that. I certainly did not want to hurt anyone. So, I became even more of a passenger in life. I had nurses, a hospice nurse named Robin here. I was suppose to except this cancer and its lethal outcome after all it was text book. It even took Ted Kennedy. I was essentially given Months to live and was told to get my personal things in order etc.
Well, As time went on and I continued to leave all of these situations regarding my impending death further behind me in the dash board mirror of my life. I decided after 3 years that I would approached my Dr’s and I said that I wanted to get my license to drive reinstated. My oncologist said I do not see why not and my Primary care Dr. Signed off as well. The Department of motor vehicles medical division got the paperwork and questioned what? He surrendered that license due to terminal brain cancer. The Dr’s response to them was that Dans not the typical Glio patient. So, I had hours of cognitive testing including vision , field vision, reflex coordination and the results came back. I passed with flying colors. Finally, I had my road test remember the year 2013-2014 winter? 9 feet of snow. That was the road that I was tested on. Narrow, icy streets and I was driving my wife’s small Suv for the first time that day. The car that I had been practicing on did not have a center console emergency brake so it could not be used in my road test.
My wife was working so my son was now my sponsor and sat in the back seat😀 Life is funny years back I was his back seat as his observer. Lol
Well, the Medical division tester came and got into the car with us and he questioned me on a number of procedures. We were off and the tester told me to pull over and to preform a 3 point turn. He said go ahead if you hit the snow bank don’t worry, the streets are so narrow. I looked at him and said are you kidding me my wife will kill me and we laughed. I completed my test and have been driving again happily for nearly 1 1/2 years. There were times when I was going to give up on the process of getting it back because it was tiring and there were no guarantees.
By Gods grace and my fighting on my dream to drive once again was turned into a reality. I was able to get into my old car and begin my life of service to others. Whether it is to go down to the church and talk to others who are having a difficult time or to visit the sick at the hospital, hospice center or nursing home and bring the Holy Eucharist to them with a word of encouragement. Not because I am great but because our God is.
He has made my illness into a thing of beauty. I truly believe that this is the time of Miracles. We need to dare to believe. Trust in God and declare Victory of illness and enjoy your days. Keep laughing and spreading hope.
I believe that my witness in this moment and challenging the powers that be that people do survive these illnesses at least beyond what conventional wisdom might say. Who knows? Only God.
My case has been reviewed and studied by MIT as well as a prominent Dr. From China.
Gods showing everyone that he very much in the moment with us. He loves us and wants us to be in relationship with us so he can help us.
First off, Let me say this….. This writing was started on 2-21-16 and completed today 2-29-16. So a little time has elapsed but that is how it needed to be.
2-21-2016
I have not written a whole lot in the past few weeks. Their has been a lot going on. Fortunately those things have been good. I am learning as I move forward that we should not just bury a feeling or emotion. We need to decern what is going on within our mind and emotions and exercise and test them . We can sabotage our emotional health and the healing of our bodies by allowing negative thoughts to alter the moment we are in. This week I joined the next LIvestrong class as a visitor whereas I have already completed the Y Livestrong program this past Nov . I felt blessed that I was allowed to be with the new class of cancer patients and survivors. I guess I am the mascot lol
I arrived at the Y this morning and the Livestrong program was already in progress. The trainers were working with the patients on the machines. What they did was to demonstrate to their new patients/ clients the proper positions to take while working with their bodies on those machines to increase the value of the workout and preventing further injury to the individuals. The trainers then gave them their preliminary starting weights that they should use to help to build their muscle etc. I upon seeing them working with the new bees made my way to the special bike that work on. This bikes works great with my left side issues. I sat down and began my workout I rode that bike for 1/2 hour. The trainer Dan had his eye on me as did Trish the second trainer and Dan indicated that he wanted to take me to a couple of the press machines for my arms and legs. We made it through the arm workout. Dan assisting with the amount of weight put on my left arm so I would not make a bad situation worse. After we finished that I asked Dan to stretch my left side I had not been stretched since The beginning of Dec when my physical therapy coverage was fully exhausted. The stretching definitely effects my mobility and healing it is something that I cannot live without.
You see going back to that program as a guest was a Miracle in itself. I had gone in a couple of weeks ago just to sign up for a regular membership the Y allowed me to keep the membership month by month because I like many cancer patients do not know what tomorrow will bring. So, for me I did not want to be locked into a year membership when there is always the possibility that I may have to stop again at any given moment.
When you don’t work or should I say are unable to work I feel guilty in any purchase that I make. I need to justify and test the need before I do.
I just picked up this writing today again the was started last week and I am continuing it now the date now is 2-29-2016.
It’s intersting that I wrote about controlling our minds and emotions above on this page and when I was finally drawn back to this blog today I had a personal moment today that challenged me on both fronts.
I went to get of bed today and I sat up a little quicker than I normally do on the edge of the bed and my head swam and I got dizzy. It took a few moments for me to stand up and to move towards my bath. I remained a little unsteady and nervous and then the situation was over.
Given my past history with brain cancer I had some terrible falls due to my cancer I would literally spin and find myself on the ground. My first response was to say God the cancer is back. But I then stopped looked in the mirror and began to test how I looked, my mobility and said to myself, get a grip.
I was thinking to myself there are plenty of other reasons why a person could be light headed besides brain cancer. I got ready and did not make any sudden movements with my head that would make myself dizzy.
I had my breakfast and felt fine I even did a few chores where I did bend and move my head and I was fine. Praise God.
when I finally was set to go I headed out to my dads and brought him our lunch and we spent time talking and I was able to give him the Holy Eucharist. Later we went in and put the television and spent time laughing at an old show that was on😀
It was fun at one point, I was sitting there fogging out I guess and my dad said is there something wrong? You look worried. I reassured him that I was just tired which I was.
My youngest brother came and as did my sister just popped in on her lunch time to see my dad. We were talking and laughing and my sister stopped and said are you okay ? I said yes why ? I will tell you something I did feel fine but I was tired. They are so close to me that they just knew through their Spirits that there was dis- ease in me today because of what happened this morning.
please, please, if something out of the norm happens to you physically do not go negative it allows unhealthy worries or thoughts to envade your thoughts. That triggers stress, and stress causes Dis-ease in our bodies which then can manifest itself as Disease that we need to fight. Amen.
keep me in your prayers please, I will do the same for you all 🙂
I have the Livestrong program tomorrow and I will be visiting 2 separate nursing facilities to visit and bring the Holy Eucharist to friends who are not well. One is a dear friend with Glio like I have battled.
I will be writing more in the next day or so. My days have been filled with many emotions these days. I will only write when the Spirit of God calls me to. I have been helping many cancer patients in the last weeks. We meet in many different ways but it is my belief that it is preordained by God that our journeys and personal psalm # 139 should meet to help oneanother along this road.
I had a lot on my mind last night that I just could not pray away. I needed to bring each person and their families situation to God. I also have a loved one under terrible stress and I feel inadequate and don’t seem to have the right words. I can’t fix it. It’s life stuff that we all deal with but I am in the process of finding my way out of this situation and i am waiting on Gods wisdom not my own to settle it. We are called to be bigger than ourselves. So, I am electing to consider this growing pains.Since my cancer diagnosis I have asked God, what am I here for, I was so unfulfilled. So, what I think has happened is this, God has answered I am here in this moment to give back, to reach out and to demonstrate love and hope to others who are having diffuculities and challenges. Right now it seems many are cancer patients.
I told God when I was diagnosed with terminal cancer that I wanted to live and if I did not fully heal that I would be the best handicapped version of myself .
so, God has answered my prayer he is my only hope. Everyday is my next personal best. I am grateful for it, I often struggle through it but that’s okay . I am helping others God brings them to me and I tell them the truth that Gods got this. Amen. I love them and I know they see Jesus in me .
This song came on around 2:30 am this morning I was done with prayer and put my kindle on and I had it on shuffle so I never know what will come on. This song came on and I thought wow this song is perfect for what I am thinking. I am just me, I cannot fix anything personally but with reliance on Gods will and support. We can achieve anything.
God Bless You,
Danny
Here is the song that I heard and I love it. It is a reminder that we may be born in one place and move during our lives but our souls and Spirit are longing for our true home with our eternal Father. So we feel lonely at times as we live and fulfill our Earthly journeys . We are all on a journey that is given to us a gift in order to strengthen our faith . Amen.
This morning I was awake at the crack of dawn. As I said my morning prayer and got ready to hit the floor and start my day this song came on and it was a direct answer to what I had been meditating on. I will be writing more on this amazing topic on my blog today. I have a phone call to make to a friend in Connecticut who is battling Glio I then have the Livestrong cancer program to get to. Finally, I had to go to a nursing facility to bring the Holy Eucharist two 2 patients and Mary’s spouse. Mary has been hospitalized for quite some time because of a infection. She lost her lower leg because of that infection and is trying to get the strength together and to accept a new and different life that she is now living. I discussed with them the importance of faith and realizing that Gods got this. It was an honor to be able to be with them once again, to pray for healing from God for them and to administer the Holy Eucharist.
I was corresponding with Jacks daughter yesterday after his scan of his Glio brain tumor was not what we all prayed for. I am uniquely in a position to understand their position and that of their family. During that conversation she said that Jack is so young and has so much that he wants to do. I get that too. While praying this morning this song came on and I sat on the edge of the bed and said this song correlates with what I was praying on. I was praying on what Jenn had said and wanted to have the correct words to ease their burden at least a little.
This is the song that I heard this morning.
God bless you. I had not heard this song for about 30 to 40 years and it is as timeless now as it was then. We collectively as people generation to generation have not changed in our desires surrounding those we love. My mom always said Dan, love is selfish, we never want to let go.
Talking to Dan and Mary today about the places that we all find ourselves in throughout this life brought these words to my lips once again I said despite any of our hardships love makes all possible Jesus makes the yoke light and we still had joy and laughter today amid the strife. No that’s God. He is in it so we can win it, life is not a tragedy ,this is only act one for us all here in this present moment. The best is yet to come.
I believe that bottle in this song could relate to our memories and emotions in our hearts. Since my moms passing I have relived some many of the precious little moments of my childhood. Memories stored by the grace of God in my mind and Spirit that were not wiped away by brain cancer or by heavy radiation and chemo to my brain. Now, that’s God for us.
Jenns comment about her dad not doing everything that he wanted to do and the fact that he is so young makes perfect sense to me too. What I would say is this in this song it speaks to a box full of memories that had not come true, but when the box gets opened their were prayers written down that were answered by God and our loved ones which are gifts from God.
Do I think that Jack will beat this Glio? I say why not ? I am no more special than everyone of you, yet I sit here today after driving myself to the YMCA , riding the exercise bike for a solid half hour, I walked a mile and a half in and out of the nursing facility . I returned home and made the 15 step climb to my main floor had lunch and polished the kitchen countertops. I did this all not because I am great but because God has given me a heart of joy through the suffering and a understanding that I do not know what my tomorrow will bring but I do know my God who does.
Life is to be lived well, while loving each other and allowing ourselves to be loved it is pretty simple. Let go and let God we will never perish if we are with God. We will never truly lose our loved one that is eternal love. They are simply awaiting our arrival when God determines that time.
We need to be peaceful and move forward with our lives. God hears all prayers and answeres everyone too.
Pray for each other and trust.
God bless you all please pray for Mary and Jack and family please 🙂
Today, I got outta Dodge for a while and took myself and nephew out for a haircut. The day started the way most due start for me. I awake and fall back to sleep multiple times during the night for no particular reason. So anyway I was glad to be taking him today because I needed to get up and go 🙂
After our haircut we headed out for a slice of pizza before coming back to my home. Stevie wanted to play with the puppy.
My mind has been pondering for the last week or so how time seems to just disappear so quickly. Minutes, hours, days,weeks, months and years. As a matter of fact last week the lyrics came to mind for an old song. I have been remembering so many people who have passed and I miss them.m
i sat across from my nephew Stevie today and thought God he grew up so quickly. I remembered reading recently some where a little saying that resonated with me. It went something like this….
While your busy living your life, it is passing by you.
Isn’t that true . We are so busy planning, working, raising families, caring for parents that we get so engrossed in the things of this world that when we finally stop to look up so much has passed by.
At some point earlier in my life I was watching my young children growing up so quickly and managed to say to my wife let’s try and savor these moments they were young and we were all under one roof. I am grateful where I am now because of the mistakes that I have made as a dad and family man spending time with my wife and kids was not one of them. Our life situation of my working days while my worked the nights made me accountable and responsible for our 4 children.
God made it so that my wife and I were together in the effort. We had a sitter that came and filled the gaps who again was an incredible influence of love and kindness to my kids.
I returned home and checked my messages and on Facebook there was a picture that my daughter had reposted from her wedding last June. It was beautiful.
I then saw another post from a friend that reminined me of my mom and I thought and said out loud God mom, I miss you. Please help as I push myself through this day. I began to imagine her response to my greeting.
I happen to believe every word spoken or unspoken from our hearts is heard by our loved one who are now with God.
I threw out a search on YouTube with a phrase that was in my head. This is the song that appeared. I had never heard it before but God led me to it.
Becareful with your time it is fleeting, but it need not be lost.
Just Danny Speaks 