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Today was a day of anticipation. This morning I was up at 4:00 am and got ready for my Boston visit to Dana Farber. This was my first scan in 6 months which is a miracle in itself. I remember being there in Dr. Reardons office last July and him saying to me after that scan result. You know Dan, your out of treatment over two years now . He said with a smile. He said, you know what that means?
My response was no. He said that it was absolutely astounding that with my particular Glio that there had even been the slightest step back or recourrance of the disease. I just said its God. He does not want me yet.
Well , today I went to Dana and was the first person in the garage at 5:15 am just me, myself and I sitting in the quiet palatial front patient waiting area. I began to do my personal inventory, I missed my wife sitting with me there but had decided last Dec when I had my license to drive reinstated that I needed to go this alone. Every appointment that I attended at Dana Farber had at least 4-5 family members there to support us. I used to say here comes the Riley gang.
I I told the doctors , it’s like the bible they are my witnesses. They laughed and always go the chairs needed for everyone.
Today, I was alone. Just me and my cane. No more wheel chair, no more walker just a slow and sure walk towards the blood clinic at 6:00 am and the off to the lab for my 45 minute brain scan finally I made my way to Dr. Rear dons office for my 8:00 am meeting and results.
He was great as always and said the result was great and there is no tumor activity nor is there any scar tissue. He asked me about my life and what issues I may be having. I told him that I am pushing myself. He was thrilled to hear that I followed through with the Livestrong program at the Ymca.
i just said that I am phytigued a lot. He said we can try to do something to help the body. So he prescribed something and I went to get it and was told that he would have to call the insurer and have them approve the reason and need for it.
My wife currently pays into her plan and it is part of her work benefit the insurance cost my wife and her employer pay is 24,000 a year.
So, we wait and see how this shakes out. 🙂
in the meantime thank you all for your prayers.
i am truly grateful to my God for allowing me this time with my wife, dad, children and my family and friends. This will truly be a joyous Thannksgiving and blessed Christmas season.
its funny this morning as I laid in bed before getting up at 3:30 I turned my kindle on and it was playing Christmas music. It was a tad early but the music brought moments of long ago, my mom, grandparents and friends who not await me when I join them. I thought that was a beautiful sign that they were there and know my own personal fears, doubts and securities as to what might have happened today at that office. I feel the prescience so offen of the Blessed Mother with me , a sense of comfort to me.
none of us is ever alone , love surrounds us.
God Bless You All,
Danny
Just Danny Speaks 