We Good morning all Just Danny here. Sitting in my docking station per usual👍😀.
Another good night sleep and my Janetwas buzzing around me all nightlong taking care of my needs. She is a doll. She is always propping my pillows making sure that my Christmas music is on low and does not shut off on me. You all know how much I love music any genre really. The word is getting out slowlyabout my health but surely which increases the traffic to the house. But, we let people know the truths hat we need to minimize the length of visits and we watch not to have too much action here at one time. The hospice expletive know their stuff. They told us on the onset to leave time for family first that it was a necessity. With all 4 of my children and their different personalities that they need the time to get through this. I instinctively knew that because I too need them with me .My children Janet and my family are my very much a part of my physocolgical and emotional health.
This song that I love isfor my beautiful Janet who woke me up early. Got me safely into the bath, got my Meds and breakfast All the while saying Danny look it’s snowing! She knew it was something I would like and that I did👍😀 . It made my morning ever better. I wake up every morning and we say the same thing after prayer… Janet says how do you feel? Do you still feel the same meaning pain symptoms etc. with her help I get out of bed and do my morning check list which I say Thankyou God no pain no headaches.all glory is his alone.
As I am writing this blog.. This song popped into my head and I searched it and found it . I have not heard it for years. The first note that my daughter heard she began to sing the song and knew the Artist. I was so happy I thought to myself are work raising our children with their faithhas really taken root. In this life the kids and everyone needs Ana Spiritual anchor and there is one God so why would you want to live in a world where your faith which is so important that you ignore it and are left with despair and hopelessness.
The silver lining of being given 5 years beyond my original diagnosis is that I have had time to take care of business that was important to myself and my family should the Time come.Not many get that we we did.
i have heard countless stories of people who go out to do an errand and never return. My mom ever n found her mom who had died suddenly one day at her home and the sudden shock of her loss if of her effected her and our family for so long. My mom always said kids you love big, you lose big. She was always with her mom as were we as a family.Nana Ilene was a doll.
What I too truly new when my mom passed three years agonext Aug August from cancer is that love is as she said selfish we never want to let go. Wewe all prayed as as a United family we were in constant contact with her said every word that could ever have been said. Said we love you and Thankyou to her a million times and guess what there is always that desire for yet another kiss, another hug or another I love you.
We have been busy here amongst other things, we met with a Social worker through hospice to help us devise a plan for me to transfer from my home to a hospice facility when it is deemed necessary or when and if I am incapacitated and unable to even care about myself. My family wanted me here but I insisted that I wanted to be somewhere where I would receive full personal care of a professional staff and where my family would be supported as well. The family is my primary concern. That’s all thatieveryone I really what I care about. I told my Janet as long as you all are happy then that’s all that all that matters.
We were fortunate our dear friend Deacon Paul from New York flew in last week to help us to get things together and to make sure that we could get some of the possible hiccups out of the way. So, again we were Blessed. You will not hears complaint about anything.
This is is the song that I mentioned above it is the silent acclimation in my heart
Jesus is carrying this entire family for ever.i know Jesus and my Heavely Father has me no matter what. I am without fear and worry not about tomorrow God has that too.
Keep smiling Thankyou for your continued prayers. You remain in our as well.
Love, justdanny and family.
Just Danny Speaks 
Hi Dan, Thanks for your words. The guys are up at St. Basil s this weekend for their Advent Retreat. Paul, Bob, Ricky, Pat Barletta, etc. Yes how about that snow this morning!?!? Exactly as it should be. So beautiful. Well it sounds as though you and Janet and family have everything in good working order. Keep up the good work Dan….you sound good. Love you and love to that Saint that you live with : ) Peace Buddy, Diane >
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Hugs to you and Janet.
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Thanks Sue ❤️️Danny
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Love & prayers Danny to you, Janet & your children. We had snow here in DE too!
Love, Nancy (your Mom’s cousin-Doris’ daughter) & Bill
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Thankyou Bill and Nancy, of course I remember you all. I loved your mom as did my parents we used to love her visits to my Nana Ilene’s house . Your mom and I loved very fresh bread with butter. She was a sweet lady. It’s been now 2.5 years approximately since moms passing we miss her a whole lot still. I remember you both joining after my moms mass at their home to break bread as family. As time I watched my God mother Aunty Jeanne walk the same health Dilema almost to the T it was a long and sad journey over the last4-5 years but faith has carried us through it all. My mom and my Aunty deserved better. It is hard to see some one you love suffering. As I have written before Nancy I have never felt the pain or suffering physically as they had. I have suffered more a loss of my identity and who I was a family man and provider doing for everyone. So, I have been very well even going into for remission from terminal Glio for 4 years ( unheard of) along came April 2016 and tumor #2 showed up Janet detected a little something off that no one else had noticed and it was actually a new tumor. I was admitted to Brighams through the E.R. And had an MRI that showed the monster tumor in my brain the next day April 27th my brothers birthday I had the top surgeon in Bostin for Brainsurgeryon proformance a 7 hour brain surgery where he removed my skull and remove an orange sized tumor and cleared the margins. It was a very dangerous surgery. Before the surgery it was suggested that we may not want to continue because I could be totally handicapped from it no guarantees. Janet and I just looked at each other and directed the answer to the doctors. No, Gods got us here so we are going ahead. I think our quick response surprised them. We just felt peaceful so, down I went. I was told I would be in the ICU for 3 days and the next morning I was moved to the step down unit.i had no painkiller or pain after surgery and felt so well. I had brain surgery on Friday morning. And was released on Sunday afternoon kDec2nd to go home to my home with Janet family and friends whothrew a 30th anniversary surprise party at our home on that hospital the scan revealed hat a new tumor took the place of my old one. They get more aggressive each time.I have ewhat Senator Kennedy had and lived just over a year or so which is the norm for
This.
My doctor who I love at Dana Farber Dr. Reardon knelt by my bed and told me that it was really bad. A new tumor had come back yet again adjacent
Ent to the old tumor that was removed in April. The aggresiVe treatment which had stripped my body of all energy and was no longer working should be suspended. We too agreed we knew in our hearts. There is no more treatment, surgery, chemo or radIation available. Itwas decided that I should begin home hospice and we took it from there. So, today is MondayDec19. I was up early at around 4 after sleeping well. Janet’s been getting anything and everything I need. I have no pain I just have an endless tiredness and the peace of Christ that pervades this home and us. Everyone who enters this house says the same thing even the Hospice workers. The feeling and sense of peace overwhelmed them. I say all the time it’s God we are praying our church is praying prayers from everywhere are showering in and down. That’s the power of Gods love.My current tumor covers my brain and is pushing it into my skull inside. The doctors nurses and medical people including hospice cannot believe that I am presenting so well. Able to communicate think and still have the mobility to do what I can do. If and when this progresses only God knows they say that it will be swift based on the tumor. I will be in an outpatient fa city for my well being and that of my family most importantly.ihave found that I living
we walked into on Sunday night it was surreal. That God he always gives us better that we deserve in my opinion. I hope Deacon Bill and your family are well too.
God Bless you all. Merry Christmas t all.
😀👍❌⭕️🎅🌲🌲🌲❤️🎅just me
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